Now where am I going with all this? Well, this morning, I referred to Siobhan as my 'Arthritic Daughter' on facebook (dang you facebook, the bane of my existance). A friend called me out on it (and in retrospect, it was probably well intentioned) and I explained my reasoning (it was all having to do with a spider and Siobhan not being to jump or climb to get the spider because of her swollen knee). The label was in jest but it got me to thinking. I refer to Siobhan as my oldest daughter, my beautiful daughter, my smart daughter, and when the occasion permits it, my disobedient daughter because all of those statements are true. But so is the fact that she is my arthritic daughter. Now, I don't want the JRA thing to be her complete identity but also don't want the fact that she's pretty to be the sum total of who she is or the fact that she's smart to be the only thing she's known for. But it would be unrealistic to not acknowledge that she has arthritis and it helps make her who she is. What she/we end up doing with that part of her identity is going to make it bad thing or a good thing...but I think that is an evolutionary thing anyway. So yeah, when I called her that, I was joking (because that's what I do-see above), but it is true. Just like how she's my left handed daughter, my daughter with loose and missing teeth, and my daughter who loves Parmesan cheese.
Some pictures of my oldest, beautiful, smart, arthritic, left handed, sometimes disobedient, parmesan cheese loving daughter.
In other news, Carson and I have both had some weird drams (premonitions) about the future for Siobhan. Mine was that Siobhan needed a hip replacement due to the arthritis. The funny thing is, as far as we know, Siobhan doesn't have JRA in her hips and while replacements are sometimes necessary, they're pretty unlikely. Carson had a dream where Siobhan was playing competitive soccer and one of the dads was complaining that Siobhan couldn't hack it because she couldn't run very well. So Carson went over and punched the dad in the face. Chronic auto-immune disorders will do weird things to people.
So true that everyone has their own way of dealing with things. We always tend to think that we're the one who's seeing and responding to things "correctly," but there are so many different ways to approach a difficult situation! And sometimes it takes everybody's different approaches to make sense of something. I'm looking forward to reading your updates! All our love to you guys.
ReplyDeleteWhen Isaac was born, I would go around and tell everyone that he had a stoke. People would compliment him and I'd respond "Yes, and can you believe he had a massive stroke?" I just couldn't get past his 'diagnosis'. It's taken years, but now when someone tells me how wonderful he is, I say Thank you, and leave out the stroke part. I think it's a mourning process and an acceptance thing as well. Of course the fact that Isaac's symptoms are almost invisible helps me move past it as well. If he was constantly battling it, I'd want everyone to know. As for FB, Context is everything... :)
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