Sunday, June 26, 2011

Not Much to Say...

I realized today that I hadn't posted in a while. I don't know if I have any loyal readers, probably not, but I thought it might be good to put something up just in case. I've been asked a lot lately how Siobhan is doing and it's so gratifying to know that so many people are thinking of Siobhan and praying for her. It really means a lot.

Siobhan is doing well. We are all just adjusting to life with Juvy and making the best of it. I think the thing that is bothering Siobhan the most is side effects from her medication. The prednisone is doozy and it is making her quite emotional. Because of that, we started to taper her off of it a little sooner than expected. So she's going to be off of it about a week sooner that we had planned. We're very grateful for that. We go back to the rheumatologist on July 14th and we're hoping for good news. They need to do some blood work to make sure that her liver function is up to snuff (the methotrexate can have a negative effect of the liver) but I think she will be fine. We're hoping for improvement in the swelling and improved flexibility which I think is starting to happen already.

We are playing with different ways to make her shot a less negative experience. A sweet sister in the ward brought her a beautiful statue of Christ which Siobhan always makes sure she has with her. This past Friday, she didn't cry at all when I gave it to her because we decided on a 'shot song'. I had to sing 'Who Let The Dogs Out' and it seemed to work! She's only one shot away from getting her ears pierced. We're all very excited!

So that's the long and short of it. Not too many updates, but things seem to be going well. Love that little girl!

1 comment:

  1. Hey, I'm a loyal reader! :-) I love reading your updates--can't wait to see you guys in person soon! How fun that Siobhan is close to getting her ears pierced...does it strike you as odd that her reward for getting repeatedly jabbed with a sharp object is to get jabbed a couple of more times with a sharp object? I guess context makes all the difference!

    ReplyDelete